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A good week

posted Sep 20, 2013, 9:18 PM by Melissa Burke   [ updated Sep 20, 2013, 9:22 PM ]
Mr. Peter had a great week this week - here was the play-by-play...
  • Monday, we saw the PT who said he was looking really good - making some good progress on his tight neck (torticollis), head control, and overall range of motion.  All great things.
  • Wednesday, we saw the Speech/Feeding therapist and Peter showed us all how he can suck on a paci - hooray!!  She was impressed and said she didn't think he would get this far already. 
  • Thursday we went to Duke for a follow-up appointment at the Special Infant Care Clinic and besides the car rides to and fro, he did amazing - I don't think he cried all day. It's weird but I actually think he likes going to the doctor after all that time in the NICU. At some point I'm sure he'll come to hate it, but so far, he is a really good patient. Overall, doctors said they were impressed by how good he looks. He continues to pack on about an ounce a day (now up to 11 lbs, 8 oz) and they thought his overall tone looked good. We weight adjusted his meds and started him on a new formula supplement so I'm hoping that both might help with some of the lingering reflux he's battling. I was really encouraged by one exchange with the doctor:
    • She asked me to remind her how old he is and I said three and a half months. She said, no, not his adjusted age, his real age (adjusted age would mean based on his due date of July 4th instead of his actual birthdate of June 3, so closer to 2.5 months). And I said, yes, three and a half months. To which she said, oh, he looks really good, I'm impressed. Can only read into that exchange that she actually felt like Peter looked more advanced then she might expect for him at this stage. Fantastic!
  • Friday saw Peter actively sucking on a paci for a good portion of the morning and seeming to be comforted by it - amazing! He was generally a happy camper all day (except in the car of course) and tonight I managed to put him down without a scream fest. It felt really nice.
So all in all, feels like some great forward momentum. We are praying that we continue on this path in the days ahead.  Still no milk by mouth just yet but hoping if we can continue to get some consistent paci action that we might be able to try before too long. As always, thanks for your contined thoughts and prayers for more weeks like this one!
 Ah, shucks, Mom. Are you bragging about me again?
Look guys, I can do it!!
Melissa Burke,
Sep 20, 2013, 9:19 PM
paci 2.JPG
Melissa Burke,
Sep 20, 2013, 9:19 PM