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posted Jul 19, 2013, 3:48 PM by Melissa Burke
Well, while I don't have anything new to report on the perplexing MRI saga, I do have great news...we are making plans to bring Peter home next week!! Current plan is Tuesday or Wednesday. We have to wait for all his supplies to come in (we are going home with a pulse oximeter, oxygen, and suction equipment just for peace of mind and of course the equipment for his g tube). Then we have to "room in" with him for at least 1 night at Duke so we can feel comfortable using everything while the nurses are still there to intervene/assist. I actually think that is a great idea - I don't think I'll mind using some training wheels for a night or two. We are planning to do that Monday night. Then if all goes well, we'll be home by the end of the week. I feel like this will be such a great milestone that all the talk of the future and potential struggles has faded for a bit. We are definitely ready...

Sweet Peter now very alert following his surgeries
and getting ready to come home!!